Citizens' Council on Health Care

The Council is organized as an independent 501©3 non-profit organization.

Incorporation by the State of Minnesota: August 10, 1998.

About Us

CCHC

“A free-market resource for designing the future of health care”

Our Mission

To enable individual control in health care decisions by supporting free market principles.

Our Goals

CCHC Officers


Twila Brase, president of CCHC, participates in panel discussion on genetic privacy at a consortium held by the University of Minnesota, Minneapolis, April 2003. From left to right are Professor Timothy Church, PhD, MS, University of Minnesota School of Public Health, Ms. Brase, Professor Steve Jacobsen, MD, PhD, Mayo Medical School, Don Gemberling, Minnesota Department of Administration, and Professor George Annas, JD, MPH, Chair, Health Law, Boston University.

Chairperson
Martin N. Kellogg, President, UFE

President
Twila J. Brase, R.N.
Public Health Nurse

Administrative Secretary
Ellen Loegering
Citizen

Treasurer
Val Baertlein
Master in Public Health

CCHC ACTIVITIES

Public Comments

Patient Privacy

Other

Public Forums

Speeches (Limited List)

Testimony (Limited List)

3/20/03: CCHC Testimony on MN Plan to Mandate Genetic Testing of Newborns
1/22/03: CCHC Testimony, Minnesota’s Proposed Patient Surveillance System
2/20/01: Hearing to discontinue MN Department of Health access to patient data
3/13/01: Proposed Transfer of Vaccine Mandating Authority to MN Health Dept.
02/20/01: CCHC testifies in support of patient privacy before MN House Committee
03/21/00: Minnesota House Tax Committee - MinnesotaCare provider tax
03/09/99: Patient protection bills in Minnesota
11/06/98: Healthy People 2010 (Chicago, IL)
07/16/98: Immunization Registries (Atlanta, Georgia)
07/21/98: Unique Patient Identifiers (Chicago, IL)

Kudos for CCHC

"CCHC Educates"
After watching groups lobby for more than forty years, I have decided they can be classified into four different teams. Team One panders to their members. They say they fight the good fight every year, and every year they lose. They seldom show up for the game at the Capitol…Their political game plan is to beat on politicians and elected officials. Team Two fields an excellent team at the Capitol. Its lobbyists know the Capitol players. Such teams get some victories, especially if the team members understand the process and the issue as well as having the connections. Team Three goes one step further. It has good lobbyists at the Capitol who work with a field team of grassroots players all across the state. They coordinate the message so that the lobbyists are saying one thing when legislators are at the Capitol. Members from across the state say the same thing when legislators return home each weekend…But the Olympic Award goes to Team Four. In addition to good lobbyists and grassroots organization with political muscle, Team Four knows that in the final analysis legislators will do what constituents want. It takes time, but to survive elected officials need to respond to their constituents. Team Four educates the public. All other things being equal, I will bet on Team Four every time. The best Team Four from the category of smaller associations goes to Twila Brase, President of Citizens’ Council on Health Care (CCHC) and its members.They work the press hard and in the process educate the public as to their view. - “CCHC Educates,” Winston Borden, Minnesota Government Relations Report, 8/9/04. [emphasis ours]

PRESS RELEASES

2006

2005

2004

PUBLICATIONS

Articles/Letters Published (Limited List)

CCHC Analyses of Legislation

Newsletter

At this time the CCHC newsletter is distributed quarterly only through the U.S. post office. Please contact CCHC with your mailing address if you wish to subscribe.

From the Spring 2006 Newsletter:

National 24/7 Surveillance System Begins

The Centers for Disease Control and Prevention has begun a national data integration system. As a cornerstone of the federal BioSense project to detect public health and biological events across the nation, Informatica PowerCenter is a “key enabler of the nation’s ability to integrate data from emergency departments, clinics, pharmacies and other facilities across the nation,” says the February 21, 2006 Informatica press release. Barry Rhodes at the CDC said, “[W]e’ve achieved the ability to capture, move and analyze vast amounts of health event data in real-time in order to effectively manage information.” The CDC will collect real-time data from hospitals in 30 cities by the end of 2006.

Reports

Poster / Brochure

Policy Briefs

HEALTH CARE ISSUES

Consumer-Driven Health Care

MSAs are not FSAs are not HRAs Free the MSA Medical Savings Accounts - summarized Xerox offers $6,000 to employees for individual purchase of health insurance

Emergency Health Powers Act

MN Health Powers Act Passes MN Public Loses Rights in Health Powers Conference Committee Medical Martial Law in Minnesota? CCHC Testifies to Constitutional Concerns In Minnesota Health Powers Act CCHC Closed Meeting Provision Attached to Anti-Terrorism Bill HHS Unveils 24/7 Plan to Track Patients "Freedom's Victory" Not Found in President's Pledge to Public Health CDC's Model State Emergency Health Powers Act Goes Too Far

Evidence-Based Medicine

Bureaucrats at Bedside CCHC REPORT: "How Technocrats are Taking Over the Practice of Medicine: A Wake-up Call to the American People" EBM May Lead to Rationing "The National Quality Forum is setting standards for primary care" (American Medical News, January 12, 2004) - CCHC quoted Practice Guidelines (Directives)

Genetics

England considers DNA profiling at birth Newborn Screening

Government Programs

Medicare MinnesotaCare Government Health Care Diagram

Health Care Workforce

Medical School Applications Falling Want a Nurse, Get in Line!

Health Disparities

Health Savings Accounts

Answering Your Questions About Health Savings Accounts (CAHI) IRS - Fact Sheet on HSAs IRS - Q & A on HSAs

HMOs & Managed Care

HMO Guidelines or New Mandates? Blame Congress for HMOs HMO Rise Driven by Government, Not Market Linda Peeno, MD testifies before Congress on HMO denial of care HMO Diagram

Medical Practice Guidelines

HMO Guidelines or New Mandates? Evidence-Based Medicine

Medical Records

Who Sees Your Medical Record? A Flow Chart of Disclosures Access to Medical Records in Minnesota MN Health Department Interpretation of Federal HIPAA Privacy Rule Maximum Charges to Copy Medical Records in Minnesota

National Health Systems

Kennedy Pushes Universal Health Care for All Physician Groups Declare"Right" to Health Care an Issue for 2000 Government: A Wedge Between Patient and Doctor National systems around the world experience access problems

Newborn Genetic Testing (AKA “Newborn Screening”)

CCHC Resolution on Parent Consent for Newborn Genetic Testing Added to 2006 MN Republican Platform Parent's Right to Say No" to Newborn Genetic Testing Press Conference Newborn Genetic Testing & Informed Parent Consent 2006 NO PARENT CONSENT required for sharing private medical record data with government officials - NOTE: Although hospitals and clinics are not required to share private data, federal law permits disclosure without consent Parent Form to Require State of MN to Dispose of Newborn Blood Specimen (DNA) and Genetic Testing Results - USE FOR CHILDREN BORN AFTER JULY 1, 1986 Parent Form to Refuse Newborn Genetic Testing - COMPLETE PRIOR TO TESTING 2003 Minnesota Law allows Parents to refuse Newborn Genetic Testing Minnesota Health Department Human Genetics Home Page Forms for Refusing Newborn Screening (Genetic Testing) in Minnesota - MDH website CCHC Testimony on MN Plan to Mandate Genetic Testing of Newborns FMI, go to the MN Department of Health Newborn Genetic Testing website

Patient Care

HMO Guidelines or New Mandates? Government: A Wedge Between Patient and Doctor Institute of Medicine Recommends Tracking of Medical Errors National systems around the world experience access problems


Twila Brase, CCHC president, presenting on medical research and deidentification of data at the National Press Club for the release of the Institute for Health Freedom’s Gallup poll results on medical privacy, September 26, 2000.

Patient Privacy
HIPAA - the Federal Medical Privacy Rule
2003 Minnesota Law allows Parents to refuse Newborn Genetic Testing
Medical Confidentiality Strategies
Government Surveillance
Identification Numbersand Data Systems
Children and Schools
Database Integration
Immunization Registries
Government Smart Cards
The Health Passport Program
Reports and Rulings
National Immunization Registry Initiative
Administrative Simplification Act
Federal Privacy Act of 1974
Social Security Numbers
Shalala’s Privacy Recommendations

Provider Tax

Health Care Access Fund Balance Statement 2003 - footnote 6 explains plan to transfer money to General Fund
“Increase” In Minnesota’s Health Care Tax Set For 2004
Summary of CCHC Report on the MinnesotaCare Provider Tax, 2000
Provider Tax Poster (note: tax rises to 2 percent on 1/1/04)

Rationing

CCHC’s Nine Arguments Against Adopting the Oregon Health Plan in MN, 5/18/03
Oregon “Health Care Rationing” Plan - CCHC formatted list of health care services, 4/29/03
Oregon Health Plan Prioritization of Health Services list - actual list (begins at page 399 of state report)
World Health Organization advocates health care rationing
“Evidence-Based Medicine” guidelines may lead to rationing
National health care systems experience health care access problems
Health Care Rationing Series (WSJ) - republished by St. Paul Pioneer Press

Schools & Health Care

Letter to Hillary Clinton includes integration of Health and Schools Coordinated School Health - a project of the Department of Children, Families, and Learning Schools to bill third-parties (HMOs, insurers, and Medicaid) for special education health care services Health Plan enters school in public-private partnership Psychological testing in schools Using the Student Social Security Number to count and track children Speech by Pennsylvania State Representative Sam Rohrer (R) - Medicalization of Schools

Vaccinations

CDC Warns against use of smallpox vaccine, a report from 2002 public hearing in St. Louis, MO. (Disclaimer: CCHC does not take any responsibility for the accuracy of this report). National Vaccine Information Center's 2002 Special Report: Smallpox and Forced Vaccination: What Every American Needs to Know

Resources

National Organizations

American Association of Health Plans
American Hospital Association
American Medical Association
American Nurses Association
Association of American Medical Colleges
Association of American Physicians and Surgeons
Joint Commission on Accreditation of Healthcare Organizations (JCAHO)
National Alliance for Hispanic Health
National Committee for Quality Assurance (NCQA)
National Insurance Association of America
National Medical Association
Rural Policy Research Institute

U.S. Federal Agencies and Offices

Agency for Healthcare Research and Quality (AHRQ)
Assistant Secretary to Planning and Evaluation (principal advisor to DHHS on policy)
Capitol Switchboard: 1-202-224-3121
Centers for Disease Control and Prevention (CDC)
Food and Drug Administration
Department of Health and Human Services
Health Care Financing Administration (Medicare/Medicaid)
Health Resources and Services Administration (HRSA)
Library of Congress
National Institutes of Health (NIH)
National Library of Medicine
National Vaccine Program Office
Office of Civil Rights
Office of Disease Prevention and Health Promotion
Office of Emergency Preparedness
Office for Human Research Protections
Office of Population Affairs
Office of Minority Health
Office of the Secretary of Health and Human Services
Office of Women’s Health
Secretary’s Advisory Council on Genetic Testing
White House
World Health Organization

Media

Dartmouth Atlas of Health
PRWIRE: Healthcare
Reuters Health Information Services

Minnesota

General Information for Minnesota

Pending Legislation
Current Rules
Laws Passed In Any Given Year
Governor’s Office: #651-296-3391
House Information: #651-296-2146
Senate Information: #651-296-0504
Map of the MN State Capitol

Minnesota House: Committees & Schedules

All House Committees
House Meeting Schedule
House Television Schedule
Civil Law (data privacy) Committee
Commerce, Jobs and Economic Development (insurance) Committee
Health and Human Services Committee: Policy
Health & Human Services Committee: Finance Members
Higher Education Finance (medical and health care professional education) Committee
Taxes Committee

Minnesota Senate: Committees & Schedules

All Senate Committees
Senate meeting Schedule
Senate Television Schedule
Commerce Committee (insurance)
Finance Committee
Health & Family Security Committee (policy)
Health, Human Services, and Correction Committee
Higher Education Committee
Judiciary Committee (data privacy/civil rights)
Taxes Committee

Minnesota Government

Minnesota Government Online
Links to Departments, Executive Offices, Task Forces, and State Boards
Department of Health (public health)
Department of Human Services (MNCare/Medicaid/GAMC/Welfare)
Department of Commerce (Insurance/Health plan regulation)
Office of Technology
Department of Revenue (Taxes)

Health Care Lobbying in Minnesota

Campaign Finance and Public Disclosure Board
Minnesota Lobbyists
All Associations Which Have Lobbyists Registered in Minnesota.
Disclaimer: All State Agency staff serving as lobbyists not included.

A
Advocacy Center for Long Term Care
AFLAC
AFSCME #6
Allegiance Healthcare Corporation
Allina Health System
American Academy of Pediatrics - Minnesota Chapter
American Association of Retired Persons (AARP)
American Bankers Insurance Group
American Cancer Society
American Cancer Society Minn Division
American College of Cardiology - MN Chapter
American College of Emergency Physicians Minn Chapter
American Council of Life Insurers
American Diabetes Assn
American Family Insurance Co
American Heart Assn
American Insurance Assn
American Lung Assn of Minn
American Massage Therapy Assn Minn Chapter
American Phys Therapy Assn-Minn Chapter
American Red Cross, St Paul Ch
Apple Tree Dental
Arc of Hennepin County
Assn of Minnesota Counties
AstraZeneca Pharmaceuticals
Aventis Pharmaceutical’s Inc

B
Becklund Home Health Care
Benedictine Health System
Blue Cross Blue Shield of Minnesota
Blue Cross Blue Shield of North Dakota
Boston Scientific/SciMed
Brain Injury Association of Minnesota
Bristol Myers Squib
Buyers Health Care Action Group

C
Care Providers of Minnesota
Catholic Eldercare
Catholic Health Association - Minnesota
Children’s Defense Fund
Children’s Hospital Group
CIGNA Corp
Citizens’ Council on Health Care
Coalition for Natural Health
Coalition for Replacing the Provider Tax
Correctional Medical Services
Courage Center

D
Delta Dental of Minnesota
Dental Awareness
Domestic Violence Legislative Alliance
Dupont Merck Pharmaceutical

E
Eli Lilly and Company
Epilepsy Foundation of Minnesota
Extendicare Health Facilities

F
Fairview/Ebenezer
Fairview Health System
Federated Insurance Companies

G
Gillette Children’s Hospital
Glaxco Wellcome Inc.
Guidant/Cardiac Pacemakers Inc.

H
Hazelden Foundation
Health Care Consumer Protection Alliance
HealthEast
Health Insurance Association of America
Health Management Systems
Health Partners Lobbyists
HealthSystems Minnesota
Healthy Learners Board
Hennepin County

I
Insurance Federal of Minnesota

K
Knoll Pharmaceuticals

L
Local Public Health Association

M
Mayo Foundation
Mayo Health System
Medical Alley
Medical Evaluations Inc.
Medical Institute of Minnesota
MedPro, Inc.
Medtronic
Mental Health Association of Minnesota
Mental Health Resources
Merck and Co.
Metropolitan Anesthesia Network
Midwifery NOW
MN Academy of Audiology
Minn Academy of Family Physicians
Minn Academy of Ophthalmology
Minn Academy of Physician Assistants
Minnesota AFL-CIO
Minnesota Ambulance Association
Minnesota Association of Health Underwriters
Minnesota Association of Community Mental Health Programs
Minnesota Association of Mental Health Residential Facilities, Inc.
Minn Assn of Nurse Anesthetists
Minn Assn of Optometrists & Opticians
Minnesota Association of Resources for Recovery and Chemical Health
Minnesota Chamber of Commerce
Minnesota Chiropractic Association
Minnesota Comprehensive Health Association
Minnesota Council of Health Plans
Minnesota Dental Association
Minnesota Dental Hygenists Association
Minnesota Emergency Medical Services Association
Minnesota Family Association
Minnesota Health Information Management Association
Minnesota HomeCare Association
Minnesota Hospital and Healthcare Partnership
Minnesota Independent Health Care Providers Coalition
Minnesota Independent Insurance Agents Association
Minnesota Institute of Public Health
Minnesota Licensed Practical Nurses Association
Minnesota Licensed Psychologists
Minnesota Medical Association
Minnesota Medical Group Management Association
Minnesota Natural Health Coalition Action Network
Minnesota Natural Health - Legal Reform Project
Minnesota Nurses Association
Minn Occupational Therapy Assn
Minn Oncology Hematology PA
Minn Optometric Assn
Minn Orthopaedic Society
Minnesota Partnership for Action Against Tobacco
Minn Pharmacists Assn
Minn Podiatry Assn
Minn Primary Care Assn
Minn Psychiatric Society
Minn Psychological Assn
Minnesota School Psychologists’ Association
Minnesota Senior Federation
Minnesota Society of Anesthesiologists
Minnesota Trial Lawyers
Minneapolis Radiation Oncology Physicians
Minnesotans for HMO Reform Inc.

N
NAMI-MN
National Federation of Independent Business
National Multiple Sclerosis Society - Minnesota Chapter
Neighborhood Health Care Network
Northern Itasca Health Care Center
Northwestern Health Sciences University
Novartis Pharmaceutical Corporation
Nursing Consultation Inc

O
Oakdale Health Enterprises dba North Medical
Orphan Medical

P
PAB Genetic Transfer, LLC
PACER Center
Parker Hughes Institute
Pfizer, Inc
Pharmaceutical Research & Manufact of America
Pharmacia
Philip Morris Inc
Plasma Protein Therapeutics Assn
PreferredOne
Professional Insurance Agents of Minnesota
Prudential Insurance Co of America

R
Ramsey County
Regions Hospital
RJ Reynolds Tobacco Co.
Roche Diagnostic Corporation

S
Schering-Plough External Affairs
School Nurses of Minnesota
Sioux Valley Hospitals & Healthcare System
SmithKline Beecham
St Cloud Hospital
St Jude Medical, Inc
St Luke’s Hospital
St Mary’s/ Duluth Clinic Health Systems (SMDC)
Supportive Housing and Managed Care Pilot
SW Minn Emergency Medical Services Corp

T
Third District Nurses
Treatment Advocacy Center
TwinWest Chamber of Commerce

U
UCare Minnesota
United Cerebral Palsy of Minn, Inc
United Health Group
United Way of Mpls Area
University of Minn Physicians
University of Minnesota
Upper Midwest Organ Procurement Organization Inc d/b/a LifeSource
Urban Coalition

W
Wyeth-Ayerst Laboratories 1, 2, 3

CCHC’s Fourth Annual Health Care Policy Event

WHO ELSE HAS YOUR DOCTOR’S EAR?
Will ‘EBM’ improve or ration health care?

JOIN CCHC

I want to Support CCHC

Contributions can be sent to:

Citizens’ Council on Health Care
1954 University Avenue West
Suite 8
St. Paul, MN 55104
Checks can be made out to CCHC.


Citizens’ Council on Health Care
1954 University Avenue West, Suite 8, St. Paul, MN 55104
Phone: 651.646.8935 / Fax: 651.646.0100
email: info@cchconline.org